Products and Publications

Each of Insight’s products is designed to convey complex information clearly, effectively, and concisely, particularly to nontechnical audiences. Our white papers, policy briefs, reports, and other publications are tailored to ensure research evidence informs public policy and program implementation. We aim to exceed client expectations with every product delivered.

Health

Managing Personal Health Information: An Action Agenda

This report presents key recommendations and an action agenda developed during a 2-day workshop convened by the Agency for Healthcare Research and Quality (AHRQ) on July 27-28, 2009, entitled “Building Bridges: Consumer Needs and the Design of Health Information Technology.‖ The purpose of this event was to develop a framework for characterizing personal health information management (PHIM) that would inform the design of effective consumer health information technology (health IT) systems. The workshop brought together leaders from multiple disciplines, including health sciences, health informatics, information science, consumer health IT, and human factors research, with specific expertise in the fields of PHIM and/or health IT. The workshop moderator was Patricia Flatley Brennan, who also served as an advisor on this report.

Through small-group discussions and presentations, the participants considered the diverse needs of different consumer groups with respect to managing their personal health information and how consumer health IT solutions can be designed to better meet those needs. Based on these discussions and presentations, the participants were asked to set an agenda for advancing the field of consumer health IT that would include specific recommendations for research, industry, and policy.

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Results of the Combating Autism Act Initiative: HRSA’s Efforts to Improve ASD Service Delivery Through Research, Training, and State Implementation Grants

In 2006, the U.S. Congress passed the Combating Autism Act (P.L. 109–416). The Act appropriated a total of $168 million, including $42 million for the Health Resources and Services Administration (HRSA), to focus on autism and related developmental disability education, early detection, and intervention. Under the authority of this Act, HRSA’s Maternal and Child Health Bureau (MCHB) launched the Combating Autism Act Initiative (CAAI) in September 2008, with the long-term goal of developing a system of services that includes: 1) early developmental screening; 2) conducting early, interdisciplinary diagnostic evaluations to confirm or rule out ASD and other DD; and 3) providing early, evidence-based interventions for children with a confirmed ASD diagnosis.

In accordance with the objectives specified in the legislation, the CAAI awarded grants to:

  •  Increase awareness of ASD and other DD
  •  Reduce barriers to screening and diagnosis
  •  Support research on evidence-based interventions for ASD and other DD
  •  Promote the development of evidence-based guidelines and tools for interventions
  •  Train professionals to use valid and reliable screening and diagnostic tools and provide evidence-based interventions for ASD and other DD

Additionally, MCHB introduced a broad-based objective for the CAAI aimed at creating systems- level improvements at the State level that would improve access to comprehensive, coordinated health care and related services for children with ASD and other DD.

To accomplish these objectives, MCHB awarded grants to three distinct but complementary program areas that are responsible for 1) training health and allied health professionals, 2) conducting research, and 3) improving State systems of care. Over the course of the 3-year grant period, CAAI funds were awarded to 39 Leadership Education in Neurodevelopmental Disabilities (LEND) Training Program grantees, 6 Developmental-Behavioral Pediatrics (DBP) Training Program grantees, 9 MCH Autism Intervention Research Program grantees, and 9 State Implementation Program grantees.

This report presents the results of a 3-year study to assess the performance of these grant programs in meeting the objectives of the CAAI. The study did not attempt to measure long-term outcomes, such as changes in the average age of first screening, because these impacts would generally not be discernible within 3 years. Instead, the study measured results of the grantees’ efforts in the areas of training, awareness building, research, and building comprehensive systems of care for ASD, all of which are expected to contribute to the realization of the CAAI’s long-term goal.

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Results of the Combating Autism Act Initiative: HRSA’s Efforts to Strengthen State Systems of Care for Children With ASD Through the State Implementation Grant Program

Under the authority of the 2006 Combating Autism Act (CAA) (P.L. 109–416), the Health Resources and Services Administration’s (HRSA) Maternal and Child Health Bureau (MCHB) introduced the Combating Autism Act Initiative (CAAI) in September 2008. The goal of the CAAI is to enable all children to reach their full potential by developing a system of services that includes a) screening children early for possible autism spectrum disorders (ASD) and other developmental disorders (DD); b) conducting early, interdisciplinary evaluations to confirm or rule out ASD and other DD; and c) if a diagnosis is confirmed, providing evidence-based, early interventions. As part of the CAAI, MCHB awarded State Implementation grants to nine States for the purpose of improving access to comprehensive, coordinated health care and related services for children and youth with ASD and other developmental disabilities. This report presents the results of a 3-year study to assess the State Grantee’s performance in meeting the goals and objectives of the CAAI.

In accordance with the CAAI, the State Implementation grantees worked to fulfill the following objectives:

  • Create State service systems that will improve access to comprehensive, coordinated health care and related services for children with ASD and other DD
  • Increase awareness of ASD
  • Reduce barriers to screening and diagnosis
  • Train professionals to use valid and reliable screening and diagnostic tools and provide evidence-based interventions

This study collected and analyzed qualitative and quantitative data to assess the grantees’ performance and their progress in meeting the goals and objectives of the CAAI during the grant period.

The grantees were expected to implement State plans that encompassed six system components: 1) partnerships among professionals and families with children and youth with ASD; 2) access to culturally competent, family centered medical homes; 3) access to adequate health insurance and financing of services; 4) early and continuous screening for ASD and other developmental disabilities; 5) community services organized for easy use by families; 6) and transition to adult health care.

In this report, we have cross-referenced the CAAI’s goals, six system components and numerous infrastructure building activities and created six overarching areas of system capacity: 1) collaborative statewide planning structures and partnerships; 2) regional and community-based service networks; 3) integrated, family-centered medical homes; 4) statewide data systems for system planning and improvement; 5) funded access to high-quality services; and 6) communication tools and channels for ASD awareness building and training. This report documents the grantees’ achievements in these six overarching areas of system capacity, highlighting innovative practices that proved particularly effective and that have potential for becoming best practices in other States. We also note where system gaps continue to exist and what more can be done to fill those gaps through future CAAI grants.

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Results of the Combating Autism Act Initiative: HRSA’s Efforts to Improve ASD Service Delivery Through LEND Training Program Grants

This report presents the results of a 3-year study conducted by an external evaluator to assess the performance of HRSA grant programs in meeting the objectives of the CAAI. The study did not attempt to measure long-term outcomes, such as changes in the average age of first screening, because these impacts would generally not be discernible within 3 years. Instead, the study measured results of the grantees’ efforts in the areas of training, awareness building, research, and building comprehensive systems of care for ASD, all of which are expected to contribute to the realization of the CAAI’s long-term goal.

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Results of the Combating Autism Act Initiative: HRSA’s Efforts to Improve ASD Service Delivery Through DBP Training Program Grants

Under the authority of the 2006 Combating Autism Act (CAA), the Health Resources and Services Administration’s (HRSA) Maternal and Child Health Bureau (MCHB) introduced the Combating Autism Act Initiative (CAAI) in September 2008. As part of the CAAI, MCHB provided supplemental grants to six existing grantees within the Maternal and Child Health Leadership Education in Developmental-Behavioral Pediatrics (DBP) Training Program to focus on autism and related developmental disability education, early detection, and intervention. This report presents the results of a 3-year study to assess the DBP programs’ performance in meeting the goals and objectives of the CAAI.

The goal of the CAAI is to enable all children to reach their full potential by developing a system of services that includes a) screening children early for possible autism spectrum disorders (ASD) and other developmental disorders (DD); b) conducting early, interdisciplinary evaluations to confirm or rule out ASD and other DD; and c) if a diagnosis is confirmed, providing evidence-based, early interventions. In support of these goals, the objectives of the DBP programs were to:

  •  Increase awareness of ASD
  •  Reduce barriers to screening and diagnosis and improve systems of care
  •  Translate ASD-related research into practice
  •  Train professionals to use valid and reliable screening and diagnostic tools
  •  Train professionals to provide advocacy, counseling, and coordination of care

This study collected and analyzed qualitative and quantitative grantee data to assess the grantees’ short-term and intermediate progress in meeting these objectives as well as setting the foundation for measuring the grantees’ progress toward the CAAI long-term goals of early screening, diagnosis, and intervention.

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Results of the Combating Autism Act Initiative: HRSA’s Efforts to Improve Medical and Behavioral Interventions for ASD Through the MCH Autism Intervention Research Grant Program

Under the authority of the Combating Autism Act (CAA), the Health Resources and Services Administration’s (HRSA) Maternal and Child Health Bureau (MCHB) implemented the Combating Autism Act Initiative (CAAI) in September 2008. The CAA was designed to address the public health emergency posed by the growing prevalence of autism spectrum disorders (ASD), and the lack of adequate research, effective treatments, and services to address this growing crisis. In 2008, MCHB established the MCH Autism Intervention Research Program and funded two new research networks: the Autism Intervention Research Network on Physical Health (AIR-P) and the Autism Intervention Research Network on Behavioral Health (AIR-B). One year later, MCHB awarded seven R40 MCH Autism Intervention Research Program grants to conduct research to improve the health and well-being of children and adolescents with ASD. Together, these grants focused on conducting research on evidence- based practices for intervention, developing clinical guidelines and tools, and disseminating information. This report presents the results of a 3-year study to assess the grantees’ performance in meeting the goals and objectives of the CAAI.

The goal of the CAAI is to enable all children to reach their full potential by developing a system of services that includes a) screening children early for possible ASD and other developmental disorders (DD); b) conducting early, interdisciplinary evaluations to confirm or rule out ASD and other DD; and c) if a diagnosis is confirmed, providing evidence-based, early interventions. In support of these goals, the objectives of the MCH Autism Intervention Research Program under the CAAI were to:

  1. Support research studies that a) advance the current knowledge base pertaining to ASD and b) lead to improvements in interventions that address the physical and behavioral health needs of children and adolescents with ASD
  2. Promote development of evidence-based guidelines for the assessment and treatment of ASD
  3. Validate tools for ASD intervention
  4. Disseminate information

This study collected and analyzed both qualitative and quantitative data to assess the grantees’
short-term and intermediate progress in meeting these objectives as well as to establish the foundation for measuring the grantees’ progress toward the CAAI long-term goals of early screening, diagnosis, and intervention.

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