The Patient-Centered Outcomes Research Institute (PCORI) supports high-quality, patient-centered outcomes and comparative effectiveness research to help patients, clinicians, purchaser, payers, policymakers, and other stakeholders make better informed health and healthcare decisions. PCORI believes stakeholders other than traditional scientists can influence research to be more useful and patient centered. In support of that philosophy, the Eugene Washington PCORI Engagement Award program, named in honor of the first chair of PCORI’s Board of Governors, seeks to bring more patients, caregivers, clinicians, and others into the research process to expand the community of participating stakeholders.
The goals of this project were to (1) identify how awardees engage stakeholders, develop collaborations, and strengthen dissemination channels; (2) identify gaps in the current processes PCORI uses in the application review cycle; and (3) provide recommendations to inform future program goals, outreach, and funding strategies.
For this project, Insight—
- Developed a coding taxonomy for the PCORI Engagement Award portfolio
- Conducted interviews and surveys with awardees
- Developed an interactive project database
- Evaluated the program on many dimensions, including an assessment of stakeholder engagement, the development of evaluative measures for continued program assessment, and a program assessment from a process- and outcomes-oriented perspective
Insight also investigated how the program complements the broader PCORI portfolio of research projects and how it could further PCORI’s mission.
Engagement Award coding taxonomy; Engagement Award database; infographic and policy brief; PowerPoint presentations for external and PCORI stakeholders